Workshop 1 – Dazed and Confused: You want to bank what!?
Informed consent for the donation of biospecimens and data for research, is at the heart of human biobanking principles. However, the stated wishes of the tissue donor are not always enough to ensure this outcome. As a primary collection strategy, many biobankers engage with state run or privately operated pathology services who themselves have legal and ethical obligations with respect to tissue custodianship. These competing obligations can create tension between biobankers and pathologists with respect to tissue access for research purposes.
In this workshop we bring together representative consumers/community stakeholders, biobankers and a research-minded histopathologist to have an open discussion about policy and practice and how biobankers and pathologists can collaborate for mutual benefit.
Workshop 2 – Both Sides Now: Tissue Custodianship
Tissue custodianship based on informed donor consent is at the heart of human biobanking principles. As a primary collection strategy, many biobankers engage with state run or privately operated histopathology labs who themselves have legal and ethical obligations with respect to tissue custodianship. These completing obligations can create tension between biobankers and pathologists with respect to tissue access for research purposes - complicated further by the expressly stated wishes of the tissue donor.
In this workshop we bring together representative consumers/community stakeholders, biobankers and a research minded histopathologist to have an open discussion about policy and practice and how biobankers and pathologists can collaborate for mutual benefit.
1pm - 1:20 Conference Opening and Welcome to Country
1:20 - 2:05 Keynote Presentation - Dr Krishnan Ramanujan - "Happy": Leveraging Biobanks as the Human Factors Engine for Biospecimen Research and Health Delivery
2:05- 2:45 Rapid Fire Presentations
Jennie Hui – "A Million Dreams" - The Busselton Health Study (BHS) Biobank: a 57-year population database and biospecimen collection
Tom Lynch - “Riders of the Storm”: The Australian Arthritis and Autoimmune Biobank Collaborative (A3BC) biobank & registry for rheumatic diseases – history, challenges and future directions
Angus Netting – The development of the Adelaide Biobank: “An Amazing Journey”
Alexandra Smith – kConFab – 25 years of biobanking and participant notification of clinically significant information
3:20 - 3:40 Dr Claire Gordon "Still You Breathe" - A Research Biobank Integrated Within a Deceased Organ Donation Program
3:40 - 4:00 Solal Chauquet – “Send My Love” (To Your New Liver)
4:00 - 4:20 Lee McMichael – “Love of the Night...Bats Take Flight"
4:20 - 4:40 Rapid Fire Presentations
Leanne Wallace – "A Hard Day's Night" - Sampling Challenges for Body Clock Dysfunction in Mood Disorders
Cassandra Griffin - “Always on My Mind” - Understanding the Experiences of Next of Kin Who Have Supported a Loved One With Brain Cancer to Donate Their Brain Post-Mortem